by Admin | Jan 22, 2019 | Uncategorized
Our President, Deb Ayres, was invited to speak this morning to over 100 HR professionals introducing them to TAF. While our organization typically is represented by our kc4k kids; the meeting started at 8am on a school day so Deb filled in. “I never feel like I can... by Admin | Jan 18, 2019 | Uncategorized
Jill Kopanis with our kc4k As a parent, what would you do? You discover your child has are rare disorder called HPP (Hypophosphatasia). In order to gain normal abilities like walking, running and jumping, your child must submit to daily injections that are painful. So... by Admin | Sep 10, 2018 | Uncategorized
Check us out as the newest addition to the approved list of advocacy groups by the National Organization for Rare Disorders!https://rarediseases.org/organizations/the-avalon-foundation/
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