by Admin | Feb 11, 2021 | #kc4k
Our very own Susan Hagemeyer, #TAF board member, was featured in Toledo Parent! “Words Matter” discusses how the words we use matter when discussing disabilities and rare diseases. Here is an excerpt: “Susan Hagemeyer, an active board member of the Avalon Foundation... by Admin | Nov 5, 2020 | Patient Newsletter
Take care of your mental and physical health without leaving home or spending a small fortune! Taking time for yourself is generally a low priority in our American culture. We are taught to work harder, faster, and longer in order to excel and attain the coveted... by Admin | Jun 30, 2020 | Uncategorized
Ottawa Hills High School creates trial program to accommodate student with rare disease. One thing COVID-19 has reiterated to teachers, parents and students is the importance of a traditional classroom setting. Students prefer learning in a real classroom over... by Admin | Mar 30, 2020 | Uncategorized
Avalon Budd’s personal struggle with HPP treatments provided impetus to found The Avalon Foundation of Toledo. Avalon (Avie) Budd has a rare genetic disease, Hypophosphatasia (HPP), that is characterized by the abnormal development of bones and teeth. Avie, who... by Admin | Sep 10, 2018 | Uncategorized
Check us out as the newest addition to the approved list of advocacy groups by the National Organization for Rare Disorders!https://rarediseases.org/organizations/the-avalon-foundation/
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