SAVE THE DATE!
February 3rd, 2024
Annual Youth Leadership Brunch
December 10th, 2023
Make a blanket – Make a difference.
By Kids — For Kids
Why We’re Here
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
Of TAF Patients maintain treatment as prescribed by their physician
Keep up with TAF!
The Avalon Foundation has been passionately working towards its mission of promoting and teaching youth leadership while offering steadfast support to children undergoing life-altering treatments for rare diseases. Here are some of the recent...
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Learn more about who we are, what we do, and how we help
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.