By Kids — For Kids
Why We’re Here
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
Of TAF Patients maintain treatment as prescribed by their physician
Keep up with TAF!
Date: October 8, 2023 Time: 5:00 PM - 9:00 PM Location: SOUK Kitchen & Bar, 139 South Huron Street, Toledo, Ohio 43604 About the Event: Embark on a unique journey where the art of gourmet cuisine meets the soul of fine bourbons, all set in the heart of Toledo's...
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Learn more about who we are, what we do, and how we help
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.