TOLEDO AREA YOUNG PEOPLE:
By Kids — For Kids
Why We’re Here
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
Of TAF Patients maintain treatment as prescribed by their physician
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Tips for Squeezing in Self Care
Take care of your mental and physical health without leaving home or spending a small fortune! Taking time for yourself is generally a low priority in our American culture. We are taught to work harder, faster, and longer in order to excel and attain the coveted...
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Learn more about who we are, what we do, and how we help
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.
Founded in 2017, The Avalon Foundation is committed to youth centered leadership development through service to families affected by rare diseases. Through our #Painbox program we provide emotional support to pediatric patients and their families during life-changing transitions.
Events & Fundraisers
Visit our Rally-Up site to connet to our events to purchase tickets and access event activities.