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By Kids — For Kids
By Kids
For Kids
Why We’re Here
Our Mission
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Rare Diseases
%
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
%
Of TAF Patients maintain treatment as prescribed by their physician
Keep up with TAF!
LADIES NIGHT – Gal-Pal FUN for a great cause!
The Avalon Foundation will be hosting Ladies’ Night FUN-raiser on November 3rd at Sylvania Country Club. The evening’s funds will support “Kids Caring for Kids”; a local youth leadership program that offers support to pediatric patients fighting rare disease.
Watch Our Video
Our Story
Learn more about who we are, what we do, and how we help
Youth Community
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.
