by Admin | Feb 11, 2021 | #kc4k
Our very own Susan Hagemeyer, #TAF board member, was featured in Toledo Parent! “Words Matter” discusses how the words we use matter when discussing disabilities and rare diseases. Here is an excerpt: “Susan Hagemeyer, an active board member of the Avalon Foundation... by Admin | Nov 4, 2020 | Uncategorized
By Lilliana Stiverson (age 13) Cora Ingariola, who is 5 years old and has HPP, is a strong little girl who keeps pushing through. Cora was diagnosed with HPP when her mom, Molly, noticed that Cora’s teeth were loose already at the age of 2. Molly decided to have... by Admin | Apr 11, 2020 | Uncategorized
Thank you to Toledo Area Parent News and writer Joy Hajjar for featuring us in the April edition of Toledo Parent! Jen and Deb were honored to be included and thoroughly enjoyed talking with Joy; it was an overall wonderful experience. Thank you, Toledo Area Parent,... by Admin | Jan 18, 2019 | Uncategorized
Jill Kopanis with our kc4k As a parent, what would you do? You discover your child has are rare disorder called HPP (Hypophosphatasia). In order to gain normal abilities like walking, running and jumping, your child must submit to daily injections that are painful. So... by Admin | Dec 23, 2018 | Uncategorized
Last spring Avalon met the staff at a Vineyard Vines store in the Florida Keys. After a few brief exchanges, the store manager asked for her contact information and gifter her with several items to share with the kc4k Board. A few months later, our foundation was...
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