by Admin | Feb 11, 2021 | #kc4k
Our very own Susan Hagemeyer, #TAF board member, was featured in Toledo Parent! “Words Matter” discusses how the words we use matter when discussing disabilities and rare diseases. Here is an excerpt: “Susan Hagemeyer, an active board member of the Avalon Foundation... by Admin | Nov 5, 2020 | Patient Newsletter
Take care of your mental and physical health without leaving home or spending a small fortune! Taking time for yourself is generally a low priority in our American culture. We are taught to work harder, faster, and longer in order to excel and attain the coveted... by Admin | Nov 4, 2020 | Uncategorized
By Lilliana Stiverson (age 13) Cora Ingariola, who is 5 years old and has HPP, is a strong little girl who keeps pushing through. Cora was diagnosed with HPP when her mom, Molly, noticed that Cora’s teeth were loose already at the age of 2. Molly decided to have... by Admin | Nov 4, 2020 | #kc4k
By Alayna Sarver (age 15) Mental health—for you and your family—is a prevalent factor in your overall well-being. Although your physical health is more noticeably assessed, mental health is equally as important! Your mental health is simply how your brain is working... by Admin | Oct 8, 2020 | Uncategorized
Avalon Budd, the young founder of The Avalon Foundation of Toledo, has been nominated for a RARE Champion of Hope Award from Global Genes! Describe why your nominee is a Champion of Hope in the selected field. Avalon (Avie) Budd, who will turn 15 next month,... by Admin | Oct 8, 2020 | Uncategorized
The Avalon Foundation of Toledo has been nominated for a RARE Champion of Hope Award through Global Genes! Describe why this organization is Champion of Hope in the selected field. The Avalon Foundation began as the dream of a 10-year-old girl who was inspired to... by Admin | Sep 9, 2020 | Uncategorized
At the Head of the Herd is… Deb Ayres, President, The Avalon Foundation. Deb advocates for… patients with pediatric hypophosphatasia (HPP) and their families. Deb is located in… Toledo, Ohio. How Deb got here… When my daughter... by Admin | Jun 30, 2020 | Uncategorized
Ottawa Hills High School creates trial program to accommodate student with rare disease. One thing COVID-19 has reiterated to teachers, parents and students is the importance of a traditional classroom setting. Students prefer learning in a real classroom over... by Admin | Apr 11, 2020 | Uncategorized
Thank you to Toledo Area Parent News and writer Joy Hajjar for featuring us in the April edition of Toledo Parent! Jen and Deb were honored to be included and thoroughly enjoyed talking with Joy; it was an overall wonderful experience. Thank you, Toledo Area Parent,... by Admin | Mar 30, 2020 | Uncategorized
Avalon Budd’s personal struggle with HPP treatments provided impetus to found The Avalon Foundation of Toledo. Avalon (Avie) Budd has a rare genetic disease, Hypophosphatasia (HPP), that is characterized by the abnormal development of bones and teeth. Avie, who... by Admin | Apr 24, 2019 | Uncategorized
Principle Business Enterprises, an absorbent products manufacturer located in Northwest Ohio, holds a weekly philanthropic event called “Casual for a Cause” that enables their office associates to dress down for a minimum donation. After hearing about The Avalon...
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