by Admin | Jan 18, 2019 | Uncategorized
Link to GuideStar page by Admin | Jan 18, 2019 | Uncategorized
Erin & AvalonAmber & DebErin & AvalonThe amazing Hanson TeamPaul Molnar @ Wescott StudiosCarl & JenAvalon, Addison, & Maya After hearing Avalon’s story, Hanson Inc. team reached out and offered to donate a full project to help us tell our... by Admin | Jan 18, 2019 | Uncategorized
Jill Kopanis with our kc4k As a parent, what would you do? You discover your child has are rare disorder called HPP (Hypophosphatasia). In order to gain normal abilities like walking, running and jumping, your child must submit to daily injections that are painful. So... by Admin | Dec 23, 2018 | Uncategorized
Last spring Avalon met the staff at a Vineyard Vines store in the Florida Keys. After a few brief exchanges, the store manager asked for her contact information and gifter her with several items to share with the kc4k Board. A few months later, our foundation was... by Admin | Sep 30, 2018 | Uncategorized
The Avalon Foundation is grateful to announce our new partner, Paramount Advantage! We look forward to collaborating in the future to further our mission of helping families coping with rare disease. by Admin | Sep 10, 2018 | Uncategorized
Check us out as the newest addition to the approved list of advocacy groups by the National Organization for Rare Disorders!https://rarediseases.org/organizations/the-avalon-foundation/ 
by | Aug 15, 2018 | Uncategorized
WordPress is an award-winning web software, used by millions of webmasters worldwide for building their website or blog. SiteGround is proud to host this particular WordPress installation and provide users with multiple resources to facilitate the management of their... by Admin | Jun 4, 2018 | Uncategorized
A BIG thank you to our sponsors: Dynamic Dies Inc., Walsh’s Golf Carts, CoreLife, Collingwood Water, and Jupmode! Also a BIG thank you to our TAF Board members, Matt Ayres & Megan Brogan, for sharing your home in the Old West End with us! A wonderful time... by Admin | May 22, 2018 | Uncategorized
We were honored to be invited by the 2018 Pediatric Endocrinology Nursing Society National Conference in May. Our President, Deborah Ayres, spoke on a panel about children and painful medical treatments. We also had the privilege of Board member, Jamie Heldt,...
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