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By Kids — For Kids
By Kids
For Kids
Why We’re Here
Our Mission
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Rare Diseases
%
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
%
Of TAF Patients maintain treatment as prescribed by their physician
Keep up with TAF!
#PainBoxWarrior Cora
By Lilliana Stiverson (age 13) Cora Ingariola, who is 5 years old and has HPP, is a strong little girl who keeps pushing through. Cora was diagnosed with HPP when her mom, Molly, noticed that Cora’s teeth were loose already at the age of 2. Molly decided to have...
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Our Story
Learn more about who we are, what we do, and how we help
Youth Community
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.