By Kids, for Kids
Why We’re Here
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By proving emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.
Our Amazing Families
Don’t take our word for it – here’s what our families want to share:
Jameson - Age 13
“The biggest change that we have seen in Jameson had been increased stamina. This may not sounds like a big deal, but [enzyme replacement therapy] has allowed him to participate fully in life again, maybe that means having energy to do the things he wants to do, not just what he has to do. We appreciate all of the support from the PainBox Program.”
Avery - Age 4
“When Avery started [enzyme replacement therapy] we made a bucket list of all the “ordinary” things she wanted to accomplish. One MAJOR check off on that list was climbing the ladder at the park. Not even a month after starting [treatment], she accomplished her goal!! And thanks to the PainBox Program, she was willing and able to keep up with her injections so we could witness this awesome moment!”
Porter - Age 14
“I’ve never met another kid with HPP who also has to give himself [exzyme replacement therapy] injections. Receiving the PainBox made me feel not so alone.”
– Porter, age 14
Watch Our Video
Learn more about who we are, what we do, and how we help
How Can We Work Together?
We love connecting with others, whether they want to support or need it themselves
Make A Donation or Become a Sponsor
We are able to carry out our mission because of the generous support of businesses and donors like you in our community
Join Our #KC4K Leadership Program
We are looking for children in the Toledo area ages 8-17 who want to expand their leadership skills and perform acts of service
Become a #PainBox Family
There are many ways we are able to provide support to your child and family as you navigate your new rare diasease treatment plan
Read more about the latest TAF news as well as resources for our rare disease patients
By Lilliana Stiverson (age 13) Cora Ingariola, who is 5 years old and has HPP, is a strong little girl who keeps pushing through. Cora was diagnosed with HPP when her mom, Molly, noticed that Cora’s teeth were loose already at the age of 2. Molly decided to have...
By Alayna Sarver (age 15) Mental health—for you and your family—is a prevalent factor in your overall well-being. Although your physical health is more noticeably assessed, mental health is equally as important! Your mental health is simply how your brain is working...
Avalon Budd, the young founder of The Avalon Foundation of Toledo, has been nominated for a RARE Champion of Hope Award from Global Genes! Describe why your nominee is a Champion of Hope in the selected field. Avalon (Avie) Budd, who will turn 15 next month,...
Founded in 2017, The Avalon Foundation is committed to youth centered leadership development through service to families affected by rare diseases. Through our #Painbox program we provide emotional support to pediatric patients and their families during life-changing transitions.