END-OF-YEAR GIVING
By Kids — For Kids
By Kids
For Kids
Why We’re Here
Our Mission
We are committed to our mission of youth-centered leadership development through service to the rare disease community.
By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.
Rare Diseases
%
Of patients diagnosed with a rare disease are children
Number of Americans with a rare disease
%
Of TAF Patients maintain treatment as prescribed by their physician
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Our Story
Learn more about who we are, what we do, and how we help
Youth Community
#KC4K Youth Leadership Program
Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.
Rare Disease Community
Patient & Family Support Program
Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.
About Us
Founded in 2017, The Avalon Foundation is committed to youth centered leadership development through service to families affected by rare diseases. Through our #Painbox program we provide emotional support to pediatric patients and their families during life-changing transitions.
Events & Fundraisers
Visit our Rally-Up site to connet to our events to purchase tickets and access event activities.
A Big Thank You To
Proud to Be
