By Kids  For Kids

By Kids
For Kids

Why We’re Here

Our Mission

We are committed to our mission of youth-centered leadership development through service to the rare disease community.

By providing emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliance with treatments as well as family unity.

Rare Diseases


Of patients diagnosed with a rare disease are children

Number of Americans with a rare disease


Of TAF Patients maintain treatment as prescribed by their physician

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Our Story

Learn more about who we are, what we do, and how we help

Youth Community

#KC4K Youth Leadership Program

Designed to give kids at an early age a place to volunteer and learn to give back. Our #KC4K mission is to teach our youth the importance of volunteering, having responsibility, and being compassionate at an early age, all while becoming a leader.

Rare Disease Community

Patient & Family Support Program

Our customized care packages called #PainBoxes serve as an incentive program for children starting treatment for hypophosphatasia (HPP). We also provide support and resources for patients and their families in the rare disease community.

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